About Me

This is my treatment history since the  day of my diagnosis as you can see it has been a very long road for me but I am a fighter and I am not going to give up!!!!

2002

1st round of High dose chemo and central line placed (Broviac)

 

2003

Stem cell harvests 2 x's
Mediport/central line placed
5 rounds of high dose chemotherapy
surgery to remove initial tumor
Autologus stem cell transplant
Oral accutane
Radiation to original tumor site
Began 3F8 Monoclonal Antibodies at Memorial Sloan Kettering Cancer Center.
 

2004

 Continued with 3F8 Antibodies up to 7 more cycles of two weeks of treatment at a time.
Continued to take accutane orally
Scan showed progression in femur/ March
4 low doses of chemotherapy followed by 2 high doses of chemotherapy
surgery to repair his teeth that have been damaged by all of the chemo

2005

Feb progression in right hip
radiation to his right hip
Old mediport taken out and new one placed
June progression in several bone spots did 4 rounds of low dose chemotherapy
2 courses of MIBG Therapy/Radioactive Isotope this is given in Philadelphia, PA Childrens hospital of Philly

2006

 Still has spot on right hip
Stem Cell rescue to recover his marrow
4 teeth pulled as a result of chemotherapy
received his glasses
Tried taking ABT 751 side effects were to much for Carter to handle also received this at Childrens of Philly to continue to hold Carter's disease stable
April 06 - Started taking CEP-701 his cancer progressed while on it so we had to switch chemo once again.
The cancer progressed again with a new small spot in his spine so he switched again in June to Fenretinide chemo another low dose agent.
Unfortunately this also did not work and he had 5 new bone tumors show up on a MIBG scan in July.
On August 1 and 2 he then took Cytoxin chemotherapy once again in hopes to stop progression of the new tumors.
On August 17th he underwent another vascath surgery in preperation for another stem cell harvest to have for future treatments. We were able to collect 6 million cells!

Scans showed mixed results with possibly another new tumor in the skull in August of 06

Carter then had Cytoxin Vincristine and Topetecan to hopefully stop new progression this was in September of 2006.

Carter started IL131 3F8 Antibodies on October 24th 2006 .

Currently he is off this study due to his marrow not recovering after one round.

Carter's interests are playing playstation, playing computer games and torturing his sister!!!!!!!  He loves to play soccer but has not had to many opportunities to do this because of his illness. 

Carter is a 7 year old little boy full of life and living his life to the fullest despite what has come his way.

Carter is attending home based school when possible at home and at the Ronald Mcdonald House in New York when possible.  He is a very bright little boy upon his arrival at New York they tested him to see what level of schooling he was at and he tested 1st grade 8th month.  He is keeping up with his school work quite well.

Some day he hopes to attend his 1st grade class back home in Bridgeville, PA  at Chartiers Valley Primary School.  He did attend Kindergarten there however he missed 87 seven days.  He has yet to attend 1st grade. 

Carter has adjusted quite well with his treatments and having to travel.  He is very socialble and I beleive this is because he has had to meet so many new people all the time.